patients with uveal melanoma, a study published online in JAMA
Ophthalmology has observed, have unmet health information and psychological
Williamson, M.P.H., from the University of California, Los Angeles, and
colleagues conducted a longitudinal survey study at a university-based
ophthalmology practice from June 1, 2007, to July 1, 2011, involving 107
patients diagnosed with uveal melanoma by an ophthalmologist. The Cancer Needs
Questionnaire was used to assess unmet needs (desire for help in psychological,
physical, health information, communication, or social domains).
researchers found that 99 percent of patients expressed at least one unmet need
at one week after diagnosis and 86 percent did so three months later. Needs in
the health information and psychological domains were most frequently endorsed.
Over three months there was a significant decline in patients’ unmet needs.
There was no correlation for sociodemographic and medical characteristics with
unmet need severity. Lower unmet need severity at one week after diagnosis was
predicted by higher prediagnosis instrumental social support and lower
neuroticism. Lower unmet need severity three months after diagnosis and a decline
in needs from diagnosis to three months later were predicted by having a
smaller social network.
authors concluded: “These findings suggest that prior to or at diagnosis,
the severity of such needs and psychosocial factors that may be associated can
be identified for proactive supportive intervention.”
Williamson et al: Sociodemographic, Medical, and Psychosocial Factors
Associated With Supportive Care Needs in Adults Diagnosed With Uveal Melanoma; https://jamanetwork.com/journals/jamaophthalmology/article-abstract/2673284